JointHealth™ express   May 31, 2014

Tell us what you would like to see in an Arthritis Patient Charter

The Canadian Arthritis Patience Alliance is seeking your input for an Arthritis Patient Charter

The Canadian Arthritis Patient Alliance (CAPA), with support from the Ontario Rheumatology Association, is seeking input from you and partner organizations like Arthritis Consumer Experts (ACE) to develop an Arthritis Patient Charter. Help CAPA create the most valuable and relevant information by completing the Patient Charter survey here. The survey will take 5-10 minutes to complete. Survey responses will be anonymous and confidential; personal information will not be collected. This Patient Charter survey is available in English only.

The Charter will include the most recent updates in the landscape of arthritis and arthritis healthcare and replace the original Arthritis Bill of Rights and Responsibilities created in 2001. The Charter will reside online, in poster and postcard prints, and will be found in your healthcare providers’ offices.

The Arthritis Bill of Rights and Responsibilities was the first time that the arthritis community worked together towards a significant goal – creating a document used to lobby to government and insurers for access to new medications that included the patient perspective. The Bill also encouraged patients to continue to advocate for their rights as people living with chronic illnesses, and helping people understand that arthritis is not just part of aging.

Other groups involved with updating the original bill include the Canadian Spondylitis Association, Patient Partners, the Arthritis Society, the Canadian Rheumatology Association, and the Arthritis Alliance of Canada. The new updates will provide patients and the community with a new tool that reflects arthritis patient rights and responsibilities in the current economic, health care, and political realm.

Thank you in advance for your valuable time and feedback. Together, we can change the landscape of arthritis in Canada.