JointHealth
français
About Us

Arthritis Consumer Experts (ACE) is a national, patient-led organization that provides free, science-based information and education programs in both official languages to people with arthritis.

Whether it’s supporting patients to deal with their healthcare professional, public formulary or private insurer, helping people reach out to their local elected official, or empowering them to maintain their work careers, ACE supports Canadians living with all forms of arthritis by helping take control of their disease and improve their quality of life. ACE is guided by a strict set of guiding principles, set out by an advisory board comprised of leading Canadian scientists, medical professionals and informed arthritis consumers.

Founded and led by people with arthritis, ACE also actively advocates on arthritis health and policy issues, through ACE’s JointHealth™ family of programs and the Arthritis Broadcast Network, reaching more than 125,000 Canadians each month, including key community and opinion leaders. ACE directly distributes core activity materials to 17,000 ACE members & subscribers including the following:
  • 338 federal MPs / 749 elected provincial and territory MLAs, MPPs, MNAs
  • 10 largest private health insurers in Canada
  • 398 rheumatologists in Canada
  • Members of the Arthritis Alliance of Canada, Best Medicines Coalition, Health Coalition of Alberta, Better Pharmacare Coalition
ACE is also a leader in the Canadian patient community in providing public input to government decision-making about medications and is a regular contributor to the review processes of the Common Drug Review and drug plans in Canadian provinces and territories that invite the patient perspective in their assessments.

Core ACE activities reflect the needs of our members and must meet the central principles of being “strategic, sustainable and scalable” to achieve long-term, lasting change for Canadians living with arthritis. Our current roster of core programming for 2017 includes:
  • Jointhealth.org and arthritisbroadcastnetwork.org websites
  • 9th Annual Arthritis Medications Report Card
  • ACE - JointHealth™ insight
  • ACE - JointHealth™ express (5-6 times a month)
  • ACE - JointHealth™ webinars and workshops
  • 4th annual Best Arthritis Workplaces
  • ACE - JointHealth™ Annual Arthritis Medications Guide
  • ArthritisID and ArthritisID PRO (apps)
  • Walk 10 Blocks (apps)
ACE is also Canada’s most active research partner, currently participating in numerous projects in Canada and internationally, including:
  • ICON - Walk10Blocks (CIHR) – Lead, Knowledge User Group
  • PRECISION (CIHR) – Lead, Consumer Core
  • EQUIP/VCH – Co-Investigator
  • OPERAS (CIHR) – Collaborator
  • CIHR Project Grant (evaluation of multidisciplinary rheumatology nursing care for people with complex rheumatic diseases) – Co-Investigator
  • Making it Work (CIHR) – Key consumer informant
  • RA Narrative – Lead consumer representative on a panel comprised of 39 healthcare providers and patient group leaders from 17 countries
  • Global RA Network – Lead consumer representative on a coalition of 24 RA patient-led organizations from North America, Europe and South America.