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The internet can be a powerful and empowering research and communication tool for the person with arthritis. JointHealth™ provides links to sites found useful in arthritis education, self-management and advocacy.

While the internet is a useful place to find research-based arthritis information, it is important to note that many sites on the World Wide Web have not been updated in months, or even years. Many contain information largely driven by product advertising and might be biased towards providing material to convince a web site visitor to buy scientifically unproven products.

Before browsing through a web site, go to the "about us" section to learn who owns or operates the site, how it is funded, and whether it is governed by a set of "guiding principles".

Sites that carry the HONcode certification are considered to be the most useful and reliable online medical and health information sources available. The HONcode program is administrated by the Health On the Net Foundation (HON). The HON is a non-profit, non-governmental organization, accredited to the Economic and Social Council of the United Nations. JointHealth™ subscribes to the HONcode principles.

In accordance with our Guiding Principles, the links provided below are limited to sites which we have had the opportunity to review and consider. Links from ACE operated web sites to those not managed by ACE do not imply endorsement or credibility of the service, information or product offered through the linked sites.

If you would like us to consider adding your site to our list of links, please contact us - info@jointhealth.org

Arthritis Organization Websites:


Canada

Arthritis Alliance of Canada
arthritisalliance.ca
The Arthritis Alliance of Canada, formerly the Alliance for the Canadian Arthritis Program (ACAP), was formed in 2002. Its goal is to improve the lives of Canadians with arthritis.

With more than 35 member organizations, the Alliance bring together arthritis health care professionals, researchers, funding agencies, governments, voluntary sector agencies, industry and, most importantly, representatives from arthritis consumer organizations from across Canada. While each member organization continues its own work, the Alliance provides a central focus for national arthritis-related initiatives.

Arthritis Broadcast Network
arthritisbroadcastnetwork.org
Led by Arthritis Consumer Experts and the Arthritis Research Centre of Canada, the Arthritis Broadcast Network (ABN) is a multi-media platform for the arthritis community to share news, information and stories about living well with arthritis.

Arthritis Health Professions Association
ahpa.ca
The Arthritis Health Professions Association (AHPA) provides an excellent forum for health professionals working in the field of arthritis to learn, share knowledge, collaborate, and network. The AHPA offer webinars throughout the year; a very informative, current, and educational Newsbrief delivered directly to your inbox on a monthly basis; opportunities for research funding; recognition of AHPA members through various awards for exceptional and innovative work related to arthritis care; opportunities to attend the AHPA annual precourse; and much more.

Arthritis Research Centre of Canada
arthritisresearch.ca
The Arthritis Research Canada (ARC) is a Vancouver based research centre that conducts consumer-driven clinical research and trials related to arthritis diagnosis, prognosis, prevention, care outcomes and quality of life issues. It has a strong multi-disciplinary research team of outstanding medical doctors and research scientists, that collaborate with medical professionals around the world.

Arthritis Society
arthritis.ca
The Arthritis Society provides leadership and funding for research, advocacy and solutions to improve the quality of life for Canadians affected by arthritis.

The BC Lupus Society
bclupus.org
The BC Lupus Society's mission is to provide education and support to people affected by lupus; to create awareness of lupus; and to support advances in lupus treatment and research.

Best Medicines Coalition
bestmedicines.ca
This grassroots group of consumer and advocate organizations focuses on reform of Canada's drug review process to ensure access to best evidence-based medicines and to advocate for the implementation of an effective surveillance system to monitor the safety of drugs once they have been approved and are in the market.

Better Pharmacare Coalition
betterpharmacare.com
The Better PharmaCare Coalition represents health organizations, patient advocacy groups and consumers who believe patient access to medications deserves protection.

Bone and Joint Canada
boneandjointcanada.com
Bone and Joint Canada is a knowledge translation network of people who have an interest in the management of conditions affecting bones and joints.

Canadian Institutes of Health Research (CIHR)
Institute of Musculoskeletal Health and Arthritis
cihr-irsc.gc.ca/e/13217.html
CIHR supports research to enhance active living, mobility and movement, and dental health, addressing causes, prevention, screening, diagnosis, treatment, support systems, and palliation for conditions related to bones, joints, muscles, connective tissue, skin and teeth.

The Canadian Network for Improved Outcomes in Systemic Lupus Erythematosus (CaNIOS)
canios.ca
The organization provides support for those affected by LUPUS through understanding, education, public awareness and research.

Canadian Rheumatology Association (CRA)
rheum.ca
The Canadian Rheumatology Association represents Canadian rheumatologists and promotes their pursuit of excellence in arthritis care and research in Canada through leadership, education and communication. Click here to get a list of rheumatologists in your province or to find a particular individual. The rheumatologists in the CRA work together to develop a unified voice in the treatment of arthritis and access to care issues. The results of discussions and their recommendations are published in documents found on this site.

Canadian Spondylitis Association
spondylitis.ca
The Canadian Spondylitis Association's mission is to be the leader in Canada providing support, education and advocacy for the spondyloarthritis patient community.

Cassie + Friends Society for Children with Juvenile Arthritis and Other Rheumatic Diseases
cassieandfriends.ca
Kids with arthritis are resilient, positive and want to do all the activities any child deserves to experience – but they need our help! Since 2007, Cassie + Friends Society has raised over one million dollars to fund research, pediatric rheumatology programs, equipment, support services and educational events to ensure kids and families with rheumatic diseases are not alone. Whether you or your child has just been diagnosed, or your finding your way through the challenges and triumphs of life with chronic disease, we invite you to join our vibrant community of friends!

Exercise is Medicine® Canada
exerciseismedicine.org/canada
Exercise is Medicine® Canada (EIMC) is a movement to encourage a healthy lifestyle among Canadians. EIMC programs are based on abundant evidence that physical activity and exercise reduce the risk of chronic disease. Exercise is Medicine® (EIM) is a global health initiative managed by the American College of Sports Medicine (ACSM) that is focused on encouraging primary care physicians and other health care providers to include physical activity when designing treatment plans for patients and referring their patients to EIM Credentialied Exercise and Health Fitness Professionals. EIM is committed to the belief that physical activity is integral in the prevention and treatments of diseases and should be regularly assessed and “treated” as part of all healthcare. The Canadian Society for Exercise Physiology (CSEP) is the proud host organization for EIM in Canada.

GLA:D® Canada
gladcanada.ca
GLA:D® is an education and exercise program developed by researchers in Denmark for individuals with hip or knee osteoarthritis symptoms. Research from the GLA:D® program in Denmark has shown a reduction in progression of symptoms by 32%. Other outcomes include a reduction in pain intensity, reduced use of joint related pain killers, and fewer individuals on sick leave. Program participants also reported high levels of satisfaction with the program and increased levels of physical activity 12 months after starting the program.

Lupus Canada
lupuscanada.org
Lupus Canada is a national voluntary organization dedicated to improving the lives of people living with lupus through advocacy, education, public awareness, support and research.

Lupus Society of Alberta
lupus.ab.ca
The Lupus Society of Alberta was incorporated as a non-profit society in August of 1972 to provide education and support for lupus patients, their families and friends. It has the distinction of being one of the first lupus organizations in the world. Since its establishment, the LSA has remained a grassroots, volunteer-driven organization.

Lupus Society of Manitoba
lupusmanitoba.com
Lupus Manitoba is an organization dedicated to helping those with lupus. Its website provides research information, symptoms, facts, and personal stories of lupus patients, as well as information about fundraising events.

Lupus SK Society
lupussk.com
The organization provides support for those affected by LUPUS through understanding, education, public awareness and research.

Mary Pack Arthritis Program
mpap.vch.ca
The Mary Pack Arthritis Program (MPAP) provides education and treatment to people living with arthritis in various parts of British Columbia. Clinics can be found in Vancouver, Victoria, Penticton and Cranbrook. Services at their clinics may include physical therapy, occupational therapy, nursing, social work, and vocational counseling.

Public Health Agency of Canada
phac-aspc.gc.ca
The Public Health Agency of Canada has been created to deliver on the Government of Canada's commitment to help protect the health and safety of all Canadians. Its activities focus on preventing chronic diseases, like cancer and heart disease, preventing injuries and responding to public health emergencies and infectious disease outbreaks.

Scleroderma Association of British Columbia
sclerodermabc.ca
The Scleroderma Association of BC was founded in 1984 by five patients diagnosed with scleroderma in varied forms. Today they provide support to about 450 patients and their families throughout BC.

They exist to promote patient outreach, support and education; to create public awareness and understanding of scleroderma, and to encourage and support research.

The Scleroderma Society of Canada
scleroderma.ca
The Scleroderma Society of Canada serves as an advocate nationally for those affected by the disease and works collaboratively with regional scleroderma organizations and the international scleroderma community to achieve common objectives.

Sjögren’s Society of Canada
sjogrenscanada.org
This organization’s mission is to To provide support and encouragement to all who have Sjögren’s Syndrome, and to provide information and education to patients, the public and the medical community as to the symptoms, condition and research findings.

The UBC Division of Rheumatology
ubcrheumatology.com


United States

American College of Rheumatology (ACR)
rheumatology.org
The American College of Rheumatology is a "organization of and for physicians, health professionals, and scientists that advances rheumatology through programs of education, research, advocacy and practice support that foster excellence in the care of people with arthritis and rheumatic and musculoskeletal diseases". This site offers a "patients and public" section that includes topics such as: education, advocacy, locating a rheumatologist and information on medications.

The Arthritis Foundation
arthritis.org
This comprehensive website offers good information on most types of arthritis, as well as an excellent section on exercise and arthritis and a wide-ranging drug guide. The site also has a message board area where you can communicate with other people with arthritis.

Lupus Foundation of America
lupus.org
The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus.

Lupus Research Alliance
lupusresearch.org
The Alliance for Lupus Research (ALR) is a national health organization whose mission is to find treatments for the prevention and cure of systemic lupus erythematosus (SLE, or lupus) through the funding of a national research program.

National Institute of Arthritis and Musculoskeletal and Skin Diseases National Institutes of Health (United States)
niams.nih.gov
This organization leads the U.S. effort on research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, training of basic and clinical scientists to carry out this research and dissemination of information on research progress to improve public health.


Australia

Arthritis and Osteoporosis Victoria
move.org.au/Home
MOVE muscle, bone & joint health is the new voice of Arthritis and Osteoporosis Victoria. Our name may be new but we have a long history as the leading provider of supported solutions and expert knowledge to the one-in-three Australians who live with these conditions.

Australian Rheumatology Association (ARA)
rheumatology.org.au
This website provides information on the ARA, as well as resources for rheumatologists and other health care professionals. It also has a "community information" page that has patient specific information about managing arthritis such as how to find a rheumatologist in Australia and material on treatments.


New Zealand

Arthritis New Zealand
arthritis.org.nz
This non-profit organization supports people living with arthritis through the provision of education and support services as well as through the funding of research. The site has information on the types of arthritis, treatments used to manage arthritis, resource listings, and relevant links, including those for national and international disease specific websites.


United Kingdom

Arthritis Research UK
arthritisresearchuk.org
Arthritis Research UK is a charity that funds research into finding treatments, cures, and the cause of arthritis.


Online Research Resources:

National Library of Medicine (NLM)
nlm.nih.gov
The NLM is the world's largest medical library providing resources and research on biomedicine and healthcare. This site contains a section that is exclusively for the public that covers a wide range of health issues. The site is also accessible in Spanish.

Public Library of Science (PLOS)
plos.org
This non-profit organization provides free online access to scientific and medical research articles. The site is easy to use and covers a big range of work.

PubMed
ncbi.nlm.nih.gov/pubmed
PubMed is a service of the National Library of Science. On this site, there is free access to MEDLINE, which is a database of bibliographic information (not full articles) from health and science related journal. The site contains a series of tutorials for new users.

Cochrane Musculoskeletal Group (International)
cochranemsk.org
This specialized group of health care professionals, researchers and consumer representatives belong to the Cochrane Collaboration, an international organization that aims to help people make well-informed decisions about health care by preparing, maintaining and promoting reviews of the effects of health care treatments. An excellent source for the latest research information.