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JointHealth™ express   February 27, 2015


What has ACE done for you lately?

Here’s what we’ve been up to in the new year!

In this issue of “What has ACE done for you lately” – a monthly roundup of what we have accomplished and what we are currently working on - we highlight our campaigns in the workplace, healthcare, arthritis community and research.

Live at the Canadian Rheumatology Association 70th Annual Scientific Meeting

Consumer news reporters from Arthritis Consumer Experts, the Arthritis Patient Advisory Board of Arthritis Research Canada, the Canadian Arthritis Patient Alliance, and the Canadian Spondylitis Association conducted interviews with leading health professionals at the mobile Arthritis Broadcast Network (ABN) news studio during February’s Canadian Rheumatology Association and Arthritis Health Professions Association annual meetings (CRA). ABN reporters interviewed 18 guests who shared their expert views on spondyloarthritis, juvenile arthritis, the Choosing Wisely program, medical marijuana, and treating early rheumatoid arthritis. Starting on March 9th, ABN will post feature interviews daily on our YouTube channel at http://bit.ly/ABNYouTube. The Arthritis Alliance of Canada’s consumer coalition invites you to share the interviews with your audiences to boost the public profile of arthritis leaders in Canada.

Subsequent Entry Biologics: Why these drugs should matter to you?

Cheryl Koehn, President of Arthritis Consumer Experts (ACE), presented a national broadcast webinar on subsequent entry biologics hosted by the Canadian Breast Cancer Network (CBCN). The one-hour webinar focused on defining SEBs and the regulatory pathway for SEBs in Canada, featuring ACE’s shared experience and patient perspective and potential impact for patients living with breast cancer.

Attention Shoppers!

To kick off the third year of partnership between Arthritis Consumer Experts (ACE), Arthritis Research Canada (ARC), and Shoppers Drug Mart/Pharmaprix (SDM), arthritis information and specifically designed tools to make arthritis health accessible and personalized were made available at Shoppers Drug Mart and Pharmaprix locations across Canada. Through point-of-sale, flyer advertising and in-store national radio channel at Shoppers Drug Mart and Pharmaprix, arthritis information brochure, engagement on social media channels, including Facebook and Twitter, the January promotion reached a vast national audience.

In January, the collaboration between ACE, ARC and SDM was recognized with the 2014 Canadian Institutes of Health Research (CIHR) Partnership Award for developing an innovative program that CIHR cited for “showing how researchers, patients and the private sector can work together to provide health solutions to Canadians.”

Life Sciences Manitoba Subsequent Entry Biologics Forum

At this day long forum, Cheryl Koehn provided a review of how subsequent entry biologics (SEBs) affect patients and what patients can do to ensure they get the most updated information regarding SEBs to ensure patient safety. This forum helps shape the public policy framework surrounding SEBs.

Innovation and Healthcare Sustainability Forum

Ms. Koehn also shared a patient’s perspective on “innovation” and “sustainability” in healthcare. The event attracted 100 key opinion leaders from British Columbia’s health and life science sector, including healthcare professionals, researchers, patient groups, academia, private payers, government officials, and people in the pharma and biotech industry.

ACE is always looking for ways to collaborate with our community. Do you have any ideas to increase awareness for arthritis in the upcoming season? Connect with us at info@jointhealth.org.