JointHealth™ express   December 8, 2014

What has ACE done for you lately?

Here’s what we’ve been up to in November!

In this issue of “What has ACE done for you lately” – a monthly roundup of what we have accomplished and what we are currently working on - we highlight our campaigns in the workplace, healthcare, arthritis community and research.

ACE at the American College of Rheumatology Meeting

Arthritis Consumer Experts (ACE) attended the American College of Rheumatology (ACR) Annual Meeting in Boston in November. ACE networked with rheumatologists, researchers, healthcare professionals, patient organization and patients living with arthritis to understand the future of arthritis treatment and the promises they may hold for people living with the disease.

The scientific program reviewed new frontiers in osteoarthritis treatment in terms of weight loss and exercise, surgery and medications. Plenary sessions on rheumatoid arthritis included presentations on remission and de-escalation of therapy, a controversial topic because of its possible negative disease and policy consequences. There were also presentations that focused on a growing body of research exposing the role of a certain protein found in the blood of people living with RA called 14-3-3eta protein. Research in this field helps determine how likely RA will become aggressive in patients with RA.

The ArthritisID app (developed by ACE and the Arthritis Research Centre of Canada) was featured in a session on current trends in self-management and digital technology. ArthritisID is the most comprehensive free arthritis app for consumers, featuring the most current, evidence-based arthritis information to help detect, treat and manage arthritis.

ROAR 2014: Joint Involvement – Hips-Knees-Hands-Feet

On November 22, ACE attended ROAR 2014 at the Blusson Spinal Cord Centre in Vancouver. ROAR (Reaching Out with Arthritis Research) is an interactive, educational forum that was developed in British Columbia by the Arthritis Research Centre of Canada’s Arthritis Patient Advisory Board.

Drs. Marie Westby, Lynne Feehan, Catherine Backman, Linda Li and James Dunne presented research findings to people with arthritis, their family members, healthcare professionals and the public. Topics covered include hip and knee replacements in Canada, bone health and physical activity in early RA, the impact of arthritis on self identity and roles, digital tools for joint health and a beginner’s guide to Raynaud’s. The event concluded with a captivating talk by Marilyn Muldoon on living with Sjögren's. The ceramic artworks of Otto Kamensek were displayed in the lobby for visitors to admire. Graphic recorder Sam Bradd provided a summary of the day’s events; these can be found here.

Arthritis Consumer Experts and the Arthritis Broadcast Network were actively streaming news on our social media channels at the event with the hashtag #eROAR. Thank you to everyone for making this event a success.

ACE is always looking for ways to collaborate with our community. Do you have any ideas to increase awareness for arthritis in the upcoming festive season? Connect with us at